Many people associate a stroke with physical impairments. However, the most common consequences are concentration and memory problems, speech disorders, planning difficulties, personality changes such as irritability or depression, and rapid exhaustion. Experts estimate that four out of five stroke survivors suffer from neuropsychological disorders. The German Stroke Foundation, founded in 1993 by Liz Mohn, is drawing attention to this issue in connection with the nationwide “Stroke Awareness Day” this coming Sunday, May 10.
Survey highlights the challenges
A survey by the German Stroke Foundation highlights the challenges faced by those affected. It surveyed 1,000 patients receiving home-based follow-up care. Fifty-five percent of them reported suffering from concentration and memory problems since their stroke. Twenty-eight percent had problems with speech or reading. Such aphasias—speech and language comprehension disorders—make it particularly difficult for those affected to communicate in everyday life.
Invisible—and often misunderstood
To outsiders, these changes often remain hidden—with serious consequences for work, family, and social participation. Those affected appear healthy, which is why those around them react with a lack of understanding. They constantly have to explain themselves anew, a particular challenge for those affected. “Invisible consequences are often underestimated,” says Michael Brinkmeier, Executive Director of the German Stroke Foundation. “We want to foster understanding for those affected and educate people on how they can help.”
Recovery is possible—even in the long term
At the same time, the foundation offers encouragement: Success takes time; rehabilitation doesn’t end after just a few months. “Even if it often feels different at first: many things improve over the course of years without those affected noticing the progress right away,” explains neuropsychologist Caroline Kuhn. “Targeted training is important, but so are consistent breaks for recovery.” The brain remains adaptable throughout life—this so-called neuroplasticity opens up opportunities for progress even years after the event.
Here are some therapy tips for those affected:
- Take advantage of outpatient neuropsychology, occupational therapy, and speech therapy
- Self-training with specific apps
- Train in short sessions (20 to 30 minutes) and schedule regular breaks
- Establish a fixed daily routine for training and minimize distractions
- Use tools such as checklists or your phone’s reminder function
And tips for family members:
- Communicate openly, but without blame
- Describe specific observations instead of making judgments
- Don’t overwhelm the person affected
- Don’t take emotional changes personally
- Be patient
Together with then-Federal President Roman Herzog, the German Stroke Foundation first declared the nationwide “Stroke Awareness Day” in 1999. Since then, hospitals, clinics, doctors, and support groups across Germany have organized numerous awareness-raising activities around May 10 to educate the public about stroke.
